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To provide a place for parents and family members to meet and share experience, strength, give hope and awareness, to other families who have similar experiences raising children with ADD/ADHD, SPD, Anxiety, ASD, mental health diagnosis, developmental and behavioral challenges. Through sharing in this experience of raising these hard to raise kids, we grow stronger and more resilient.

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Sunday, September 25, 2011

Religion and Kids With Disabilities


O.k. - I think I'll be the one to talk about maybe a taboo topic? - Religion & Kids with Disabilities, because that is where my heart is right now. As I sit here and write this note to you I am sitting in a coffeehouse with my husband, anxiety riddled, because I signed my two boys up for Sunday school after church. My typical child was not too hard to convince, they had food. My Hudson, who is not so great with new experiences, and certainly not wooed by food, was entirely unconvinced that this would be a positive experience.
Now, we decided to return to the Catholic church after many years away. My husband and I are both Catholic. We made this decision with two principles in mind, education and community. We figured we had two options. One, place our child in the public system whereby, he could end up anywhere, perhaps not with my 5 year old and in a class up 30+ students; or option two, place him in a religious environment that preaches acceptance, has a small class of 20 and both children can be involved in the same community.
So, we had both of the boys baptized two weeks ago. This entailed weeks of practicing with Hudson where we baptized his Woody doll under the kitchen sink about 100 times. Practicing helped a ton and I am proud to say that overall he did great, with that part. The thing we did not anticipate was the Father rubbing the sign of the cross on head. To this he screamed at the Priest in the middle of Sunday mass to not touch him and firmly declared, "no touching!" Everyone laughed and thought this was sort of endearing, as my husband and I exchanged terrified looks about whether this was the beginning of a volcanic tantrum or not. Thankfully, not.
This leads me to now, where I sit here terrified that he may be having a meltdown over there and be perhaps hurting other children, supervised by people that may not understand his needs. None the less, I am prompted to have faith. Faith that perhaps he will enjoy it and even if he does not this time, know that it takes routine for Hudson to begin understand and even enjoy something.
P.S. Turns out he did have a meltdown, but there was a male figure in the room that calmed him down and they became buddies. His teacher did not mince words - she said, "he had a hard time," but her husband was able to connect with him. He was smiling when I picked him up and frankly that is all that matters.
Do you have trouble in church? Are you also thinking about placing your child in the private school system? Let me know. I think it is a great discussion to have. Thanks for listening. - Jen

3 comments:

  1. Is home school not an option? I home school my son. He was being disciplined, not for bad behavior, but because his mind wandered. His 60 year old 1st grade teacher thought that she could punish away his trouble focusing.

    I understand that home schooling is not an option for all, but it was the best option for us. His mind still wanders, but I focus more on what he can do than on what he cannot do. We build on his strengths and not destroy his esteem based on thing she does different than other students.

    Anyway, I admire what you are doing in terms of forming a support group for parents/ care givers.

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  2. Home schooling is for sure a big topic at my house and is something that is a serious contender when Emma is school age. School is a whole other scary topic for both myself and Jen!!
    Thank you for stopping by our blog!! -Lindsay

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  3. I'm glad you discuss this! today, at church my daughter was singing a song with the other children, and it made her happy, feel good, feel the Spirit, brought tears to her eyes...so...uh oh, crying means bad, sad, and scared...right? Well to a little girl who doesn't understand most of her body signals to begin with it does! So I didn't know how to explain that some people cry when they are happy. She didn't understand. Religion to kids who are so literal is hard. How can you explain things you can not see, and only feel, when feeling is so hard? I think she loves church. But doesn't understand...

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