I recently started a journal where I write a letter to each of my boys. It has been a way for me to document their struggles and mine and makes me feel like someday when they are older they might read it and understand some of my parenting struggles and learn from them. I have been reluctant to blog lately, because things are going so well. I felt as if it was wrong to ﬂaunt our achievements with Hudson in the face of so many others who might be struggling. I was reminded of the reasons I started this group with
Lindsay. I just wanted to hear some hope. If anything, our story is a story of the importance of early intervention. We have participated in family therapy from the beginning, therapy preschool, speech, OT, Play Therapy, Social Skills, Yoga, U-FIT, Pingree Soccer Clinic, Special Ed. pre-school, Dance, and now skiing. Intervention byany means possible is vital to your special needs child’s success. This is a letter I wrote to Hudson today.
Saturday, February 2, 2013
You are so amazing! Me and your Dad have worked so hard since you were diagnosed with Autism in October of 2010. It is now the beginning of 2013 and while you still continue to struggle with some things, you continually surprise me with your love of life, your joy, your humor and your drive. I decided early on that my job was to stretch you - not unlike Ray Charles’ mother depicted in the movie “Ray,” who made it her mission to teach her son how to take care of himself and survive in the world despite his disability. Not unlike Temple Grandin’s mother who did not cower to the restraints that Autism placed on her daughter. She took it on as her mission to celebrate her daughter’s unique vision and teach her how to interact with the world and survive despite being a
woman and a person with Autism. As parents, I believe it is our duty to recognize interests or strengths in our children and expose you to those things, so that you can truly ﬁnd a passion and a direction in life that you love.
When you were ﬁrst diagnosed, I cried forever about all the things that I thought you were never going to do. I thought you were never going to have “normal” play-dates with friends. That you would never dance or play sports with all of your sensory issues. I cried because I thought you would never interact with a teacher and give enough of your attention to learn and I cried because I thought you would never communicate without aggression. I cried about all the birthdays and holidays we would have to downplay because it was too much for you. Not surprisingly, crying about it does not get you very far.
As of today - February 2, 2013, I am proud to say that you have had birthday parties with friends. You now love Christmas and Santa. You have participated in a soccer clinic and sports and you love watching football. You are now in a public school regular education classroom with over 15 students. You have had 3 play-dates with a “regular” kid from your class. You are enrolled in “Hip Hop” Dance class - that you love! You talk about your feelings when you get mad. You have had 3 ski lessons despite your sensory issues and you are skiing!! That truly is a miracle. You are not a quitter.
I thank God, that I am also not a quitter. Me and your Dad know you are going to do great things, with great love and passion for life.
To provide a place for parents and family members to meet and share experience, strength, give hope and awareness, to other families who have similar experiences raising children with ADD/ADHD, SPD, Anxiety, ASD, mental health diagnosis, developmental and behavioral challenges. Through sharing in this experience of raising these hard to raise kids, we grow stronger and more resilient.